If you are sufficient for your task, it is too small.
--John Piper
If you're living a story that doesn't desperately cling to the provision of God, you might want to sign on with a better Author.
His way is better.
His grace is sufficient.
His forgiveness is complete.
His Kingdom is here...breaking in...now.
Time to get out of the kiddie pool friends.
The deep end will change your life.
The way to spell Faith is R-I-S-K.
1 comment:
Ben and Shaina,
I have followed your blog since shortly after Chaia was diagnosed and have had the honor of holding your family up in prayer. I am the Telemedicine Coordinator for the University of Kansas Medical Center. Telemedicine, or meeting with your doctors over an encrypted video connection, is used to connect patients at a distance to providers with services they need. At KUMC, we actually have a telemedicine Feeding Team that works with rural patients with issues like Chaia's. The patient goes to a site, often their local hospital, to use ITV equipment that connects them our doctors in Kansas City. Labs and other tests can be done at the local hospital, with results being forwarded in advance to the distant team. Feeding logs, bet you are familiar with those, are also sent in advance. I am not suggesting our team, but I do know that both Columbus Nationwide Children's Hospital and the Cleveland Clinic have telemedicine services available. I do not know if their Feeding team or doctors that Chaia sees are available by telemedicine, but it might be worth a few of those 5 hour drives to ask them. m-Health, using mobile devices like iPads and smartphones for telemedicine, may also help your family. Here a link that may give you more information. http://www.nationwidechildrens.org/telemedicine
If I can assist further, you may contact the KU Center for Telemedicine & Teleheath at 913-588-2226.
Joy Williams
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