Friday, February 10, 2012

Updates and CBus Bound

Just a quick update: Chaia's appointments were fine. Her Echo has not worsened and there are 'potentially' some spots her heart that have more activity than before. The nurse practitioner's assessment of Chaia's heart? "It sucks." But, it doesn't suck more severely than it already sucked. With her sitting up and jibber jabbering and just being more active all around, this is a good thing.

The geneticist didn't have much to report by way of new updates. Germany is still working at decoding DNA and there may be some labs sent to Philadelphia for another piece to the research puzzle. The diagnosis seems to be concretely set on GACI still, so we have a month off from the Cleveland Clinic barring any setbacks.

That appointment in a month is the 6 month CT scan to see if the calcifications are reversing or not. It's kind've a big deal. So we will rally you prayer warriors as that time nears.

As for the weekend? The Thompson Trio will be checking out of the blogosphere until Monday morning. We are heading to Columbus. I am preaching at Pulse Christian Church Sunday morning and ask for prayers as I am jazzed about preaching and may try to cram 3 hours of what God is teaching me into one message. God help them.

This is also our first return to Columbus/Plain City since Chaia's episode began there back in September. It should be fine...but maybe a little weird.

Hopefully zoo pictures and next week's prayer requests to come on Monday.

Have a good weekend.


Anonymous said...

Have a GREAT weekend, Thompson Family in a GREAT city!

Jackie Thompson said...

Have a blessed time in Columbus, hope your preaching goes well and the trip to the zoo is memorable. Love you

Anonymous said...

Hi, I have been following your site for some time now. I stumbled upon it while researching cystic fibrosis. Your story is both inspiring and humbling and your faith in God has certainly generated reflection in my own heart and mind. I am rooting for Chaia with as much faith as my weak human condition can muster. I found an article your (or your doctors) may have seen. I hope it helps. PS-I tried to attach it, but I don't know how, so I have included the reference:
Pediatr Cardiol 1984 Apr-Jun 5(2): 119-22 Marrot, PK Idiopathic Infantile Arterial Calcification with Survival to Adult Life.

virginiap said...

Checking in, and excited to see about your weekend. Enjoy it! I continue to keep you all in my thoughts and prayers. I must admit that my love for your dear sister, Mary Beth is what brought me to your blog months ago. She sure loves you three very much!

Anonymous said...

praying for you this a.m.!