Saturday, October 15, 2011

Hard 24 Hours

This is a hard road.

Shaina and I went downstairs for lunch yesterday. Five minutes after we left, Chaia's blood pressure plummeted. They had everything ready to go to remedy this drop, but then Chaia rebounded on her own. She'd had a very stable week to that point. Mom was gonna get to hold her for the first time since Sunday, and then this.

Then we left for the night and went to Ronnie Mac's. We came back to the hospital this morning to find out that her vent had gotten a pretty significant leak in it. They extubated and reintubated with a new tube. When they extubated, Chaia spit up...simultaneously losing her feeding tube from her nose. So they've had to run a new feeding tube down past her stomach to her intestines (which is where it was before).

She is visibly uncomfortable so they have sedated her.

Shaina and I feel very helpless. We can't pick her up and we can't tend to her. We can't fix it.

It has been a relatively good week, with some moments of significant hope. But sometimes the hope feels like it is slipping. That's when we need you all to hold our arms up more than ever.

Tomorrow Night in so many ways feels like the key battle in this war. I don't know what God will do, but the expectancy in our hearts is high.

This part of the journey is called sadness.

But this part will not win.

11 comments:

lawrence said...

come people of God, let us become an Aaron and Hur for these dear folks and Pray without ceasing.
Exodus 17v12
Love from South Africa

Joanne Sadlon said...

"For I, the LORD your God,hold your right hand; it is I who say to you, ‘Do not fear, I will help you.’" Isaiah 41:13

Love from North Olmsted!

I will put Chaia and you on the prayer list tomorrow at Bethany English Lutheran Church in Cleveland Ohio

Courtney said...

Mark 9:24 (ESV)
24 Immediately the father of the child cried out and said, “I believe; help my unbelief!”
Praying for the work of the Spirit in you three.

Steph said...

Praying unceasingly for you here in Charlotte, NC. "Likewise the Spirit helps us in our weakness. For we do not know what to pray for as we ought, but the Spirit himself intercedes for us with groanings too deep for words." Romans 8:26 (ESV)

Anonymous said...

Isaiah 41:10
Don't be afraid, for I am with you. Do not be dismayed, for I am your God. I will strengthen you. I will help you. I will uphold you with my victorious right hand.
Matthew 11:28-29
Come to me, all of you who are weary and carry heavy burdens, and I will give you rest. Take my yoke upon you. Let me teach you, because I am humble and gentle, and you will find rest for your souls.
I am continuously lifting you, Shaina and Chaia up in prayer. I have you on as many prayer chains as I can.
Becky Gross

Pam said...

Chaia, Ben and Shaina are on the prayer list at Faith United Methodist in North Canton, Lifting our arms to heaven for this precious child of God

MamaMarty said...

"And whatever you ask in My name, that I will do, that the Father may be glorified in the Son. If you ask anything in My name, I will do it." (John 14:13-14)

I pray daily that our Great Physician will touch Chaia with His healing. I've enlisted friends to pray as well.

Marty, Massillon

Jackie Thompson said...

Praying continuously to lift you up.

Anonymous said...

Ben and Shaina, Stay strong! Remember one of the theme songs from last week - "This is not the end!". She is your princess warrior - she is GOD'S princess warrior and she is strong! We love you, Bruce and Sharon

michelle said...

 8 You keep track of all my sorrows.
      You have collected all my tears in your bottle.
      You have recorded each one in your book.
Thinking of you in Psalm 56. David speaking of his enemies, but that He has no reason to fear because God is with him. God is with you also. He is recording all of this in His book... He sees each tear that falls. Much love to you all.

kkwoodley said...

We are praying in Wilmore, KY.