24 hours into our return voyage to the Cleveland Clinic.
24 hours in this place with a little one getting poked and prodded can feel like it takes a year off your life.
Couple things...apparently when Chaia is 2 rather than 2 months and when she is her spunky, feisty self rather than her lethargic, sedated self, she doesn't enjoy just hanging out in a hospital bed hooked up to a bunch of mumbo jumbo. So the Thompson Entertainers are going to have to show up in full force with our creative juices flowing.
The neurologist who will be doing Chaia's MRI and spinal tap came and met with us. He pulled out three small brains from his pocket and started juggling them. By the end of that visit, Chaia was letting him check her head circumference and do about 10 other things that she doesn't let anyone else try without major resistance.
Today is expected to be a very low key day. Just letting the heparin IV do it's work.
Then tomorrow morning is crunch time. Sedation and Intubation at 7 a.m. An Echo, an MRI, a spinal tap and a PICC Line to follow. There is certainly some risk with all of this and the pressure on the brain could be relieved but it may not be explained why it is there.
Not sure how we endured 100 days of this the last time.
24 hours in and I think we're already spent.
Pray for rest for Chaia. Pray for strength for us. Pray for tomorrow morning to go smoothly and lead to more answers than questions.
Chaia wins when we kneel.