Monday, June 3, 2013
Hey friends, having a tough stretch with the munchkin.
She's not growing.
There are some significant concerns with her bones.
Because of what's happening with her bones, there are concerns for her brain.
She's still throwing up almost daily.
And we are stuck in this place where it doesn't seem particularly hope-full.
When I sit back and look at the big picture of Chaia's prognosis...when I look at all the things working against her...the calcifications...the heart failure...the GI issues...the neurological issues...the bone issues...and it's not good. The reality is she's a long shot.
The big picture isn't the whole picture though. We have a God who has orchestrated this child to be fearfully and wonderfully made...with genetic mutations that cause calcium to collect and eye lashes to grow abnormally long.
This same God put us on a path to the Cleveland Clinic (closing doors at 3 other hospitals in a five day stretch) where a geneticist there just happened to have read about the disease Chaia has and was able to diagnose her in the 11th hour.
This same God has used Chaia's story to take others to deeper places of faith, for some taking them to church for the first time.
This same God has deepened our faith as a couple and deepened our marriage and love for each other.
This same God raised a little girl and a guy named Lazarus from the dead.
This same God took our sins to a cross and redeemed the worst in us with the best of Him.
The tension we are stuck in with Chaia's prognosis is the heaviness of the reality that Chaia is not well and the reality that resurrection has been God's habit for millennia.
These two realities are on a collision course. And whether that resurrection means complete and total healing or means Chaia is released from suffering and discomfort and gets to go home, our prayer remains unchanging.
Jesus, have your glory.
We need your prayers and encouragement this week. Sometimes the hard/bad report makes it hard to remember who He is and what He's done. Forgetfulness may be humanity's greatest sin.