We had our big quarterly Cleveland Clinic visit today.
It went well. Chaia didn't have a super meltdown.
Long story short, no news is good news. She seems to be progressing ok.
Obviously lots of unknowns when we think big picture.
But her heart function has not worsened. She's growing up and her heart is tolerating that.
She still isn't making much progress in taking food orally.
She still loses her first feed of the day religiously.
But she's still here.
So day after day, we will thank God for working in a dead heart, enjoy the gift of LIFE and plead for another century.