Chaia has been receiving treatment now since the end of September to combat the calcifications in her arteries. The goal of the treatment is to stabilize or even reverse the calcium collections in her major arteries that have collected in many of her vital organs.
In some cases, the calcifications are irreversible, and will continue to increase until her vital organs/systems begin to fail. This often presents in the heart (which is where Chaia's symptoms began to present), but the calcifications were also found in her kidneys, stomach, etc.
In some cases, the calcifications stabilize and the body adapts to functioning with what it has left to function. Especially in babies, the adaptability and resiliency of the human body is remarkable.
In some cases, the calcifications actually reverse to where vital organs and systems don't just have to adapt to a 'new normal' but begin to increase in function.
In any case, Chaia's heart has taken on a lot of trauma and remains damaged. But there are some long shot possibilities that the healthy part of her heart will continue to grow and sort've swallow up the dead parts of the heart. And there are long shot possibilities that if the calcifications reverse, some of the non-functioning parts of her heart might begin to revitalize.
So Monday is the day that we find out which of these is Chaia's case. Even in the long shot scenarios, Chaia's long term prognosis appears to be heart failure before she reaches adulthood.
But, she is 8 months old. It was widely assumed she would not make it to 3 months. Then 6 months. And so I guess what I'm asking from you all is that you pray to God by the power we have in Jesus' name that her name (which means 'life') would be her destiny.
Because He is the God who is the Great Physician. He is the God of dead hearts coming alive. He is the God of stony hearts becoming flesh. He's the God of the long shot.
And I like our odds.