Not much to report today. Chaia is stable. Had a good day. Was awake a ton, and calm. It is amazing the roller coaster from thinking you may have hours left with your child to being allowed to dream again about days, weeks, months and even years.
Next steps are to wean off the cpap. If she can do that, then we'll see if her body is again capable of self-sustaining. So many hurdles...Weaning Milrinone and Versed and Fetanyl and then obviously the Pomidronate needs to work at de-calcifying her body, which we won't know whether this is happening significantly for at the minimum another month.
Again this journey has essentially 9 out of 10 scenarios panning out that are bleak. But we have a God who likes those kinds of odds.
Short term. We rest and go back and enjoy Chaia for the weekend and see if we can keep hangin' on. Today was hopeful. And Romans 5 talks about how suffering if done well, will lead to hope. It is very hard some days to do this well.
Tomorrow, if things work out well. I will introduce you to a friend of mine.