This week has been chaos.
So much so that I didn't even realize the magnitude of it.
2 Years ago. September 25.
We pulled Chaia out of her car seat and she was blue and breathing heavy.
We rushed her to the nearest hospital. She was lifeflighted to Akron Children's Hospital.
She spent 5 days there while they tried to figure out why she was having a heart attack.
It got worse and 2 years ago from today on September 30, she was transported to Cleveland Clinic.
I wrote this that night
I remember it well...arriving in the rain up to the Cleveland Clinic. The entire hospital was white walls and seemed half hospital/ half asylum. It was foreign and terrifying.
We had no idea that we'd be given a five day window until Chaia would pass.
We had no idea we'd get a call around 11 p.m. the 2nd night there from a geneticist we had barely interacted with who specialized in rare genetic diseases and happened to have read an article about what Chaia had. They had a diagnosis and had a treatment plan.
We had no idea it'd be a 100 day journey of tears and heartache.
But we also had no idea the life long friendships we would make in the nurses, nurse practitioners and doctors.
I've said it before, but nurses and doctors who come to work because it's their calling are wayyy different than those who come to punch in and punch out for a paycheck.
You can tell the difference.
And they make all the difference.
2 years ago our life changed drastically. But 2 years later?
She's still here.
Some of you have journeyed with us for a long time...maybe since the beginning with this blog and I would love for you to share something that God has shown you in the last two years with Chaia's story. Post a comment and let's celebrate together! Would love to get a big response and compile them into a book. In 2 years, what has God shown you?