Had a couple minute brain-picking session with Chaia's cardiologist.
I share the medical side here, knowing full well, that Jesus has, had, and will have final authority on where her story goes.
Here's where we stand. Chaia's heart still has substantial damage to it. But it has adapted well and with blood pressure and heart meds, it has regulated a new normal.
We have gotten to the point where all of her meds have been transitioned from PIC line to feeding tube with the exception of pamidronate (the experimental calcification drug). Once these have all been transitioned we can remove the PIC line.
Today wraps up the 12th week of calcification treatment. Chaia's 3 month scan is scheduled for next week. This is the biggie. If the pamidronate is working, the calcifications should have either stabilized or begun reversal. If the calcifications are worse, I don't think any thing can be done medically.
The 'H' word is still a distant thing on the horizon. But I'm proud of my girls for hanging in. In a week, we will have been in the hospital for 100 days straight.
One of the challenges since moving to the four-oh is that Shaina and I are rotating between sleeping in the hospital and in the RM house. So it has been a while since I have been elbowed in the ribs and/or kidney for snoring and we both miss that. We also miss our own bed.
But 93 days are down and we'll do another 93 if we have too.
Because we're convinced there's something miraculous taking place.