Little Bean, I don't know what is going on in those big blue eyes of yours. You've been through the ringer in your first few months of life and your mom and I are sorry we can't make it better. We are sorry we can't pick you up. We are sorry that you can't even cry to let us know how sad you are.
Your doctors don't hold out a whole lot of hope for you. They say that the combination of your disease and the damage to your heart is probably too much for you to overcome. They say there's a chance you won't be able to wean off the ventilator. They say even if your respiratory system works without the vent, that theres a chance your heart won't be able to sustain your respiratory system. They say that even if your heart and lungs work well, theres a chance you won't ever wean off the milrinone iv. They say even if you wean off that, there's a chance that your heart will eventually give out when you grow an extra inch or gain an extra pound. They say that the calcification that has gotten you into this mess in the first place may or may not be reversible. They also say that if you survive all that, that the scarring in your heart could shrink in comparison to the rest of your fleshy vital heart and you could be an exception to the norm...an abnormality...a miracle.
Your mom and I love you so much. And what the doctors don't realize is that we pray to the God who has a track record of causing death to die. So we will pray for the vent...your heart and lungs...for the milrinone...for your growth and development...for the calcification to disappear...and for you to be on their abnormal list.
Because you're a warrior. And your God is faithful and has conquered the grave. Here's your theme songs for the week.